THE DIAGNOSIS THAT CHANGED EVERYTHING
Preschool Struggles
At 2.5 years old, my son started preschool — the same private preschool I went to as a child. The teachers already knew me, and later, my younger son would also attend. That familiarity brought me comfort, but it didn’t erase how difficult the transition was for him.
It took about three months before he stopped crying at drop-off. The teachers reassured me he calmed down quickly after I left, but it was clear that his sadness came from separation. Once he settled in, he loved preschool — he was excited to go every morning, loved his teachers, and thrived in the activities.
But naps were another battle. Falling asleep in a busy classroom was nearly impossible for him. He needed someone to rub or pat his back, and even then he was usually the last to fall asleep, if he slept at all. And if he did nap at school, bedtime at home was a nightmare.
Despite the sleep struggles, his teachers often marveled at how advanced he was. He spoke in full conversations at 3, showed strong artistic skills, and had an incredible vocabulary. At the time, I thought that was normal — I didn’t realize until later, as a photographer working with many families, how uncommon it is for toddlers to be so verbal and communicative.
He was bright, but he also needed constant stimulation. If he mastered something, he was quickly bored and ready to move on. Flash cards worked well because they kept his attention, but TV shows or learning programs only held him if he was truly interested. And when he was interested? He could watch or repeat it endlessly.
His teachers also noticed his boundless energy. He struggled to sit at the table with other kids and was far more talkative than most of his peers. He loved the trampoline, the park, anything physical — and he could keep going all day. By bedtime, he still wasn’t tired. Much like when he was a baby, I dreaded evenings because it often meant an hour or more of tears, protests, and “I’m not tired!” Eventually, we started letting him stay in his room to play or read, but even then it could take hours before he finally gave in to sleep.
The Transition to Kindergarten
When he graduated preschool and moved on to public kindergarten, I was both nervous and excited. I knew he was smart and ready for the academics, but I worried about the structure. Preschool had flexibility and breaks; kindergarten meant more sitting, more focus, and more expectations.
I wasn’t a fan of his kindergarten teacher overall, but I will always appreciate that she was the first to voice what I already suspected: “You may want to have him evaluated for ADHD.” She had been teaching for years, had seen many kids like him, and her words aligned exactly with what we were experiencing at home.
The Evaluation Process
We took him to his pediatrician — who I absolutely love and trust. She never made me feel silly for asking questions or exhausted for worrying. In fact, she’s the same doctor who later caught my thyroid condition just by noticing my neck.
For ADHD, she gave us a packet of questionnaires — one for me, one for my husband, one for his grandparents, and one for his teacher. Each of us had to fill them out separately, rating how often he displayed certain behaviors.
These were standardized forms (like the Vanderbilt Assessment Scale), and they covered:
Inattention: Trouble focusing, difficulty following instructions, losing things, forgetfulness.
Hyperactivity: Fidgeting, leaving his seat, running or climbing excessively, talking nonstop.
Impulsivity: Blurting out answers, interrupting others, trouble waiting his turn.
She also observed him in visits, and spoke to him directly (I’ve always encouraged my kids to advocate for themselves, even young).
When all the results came back, the answer was clear: he checked almost every box for ADHD.
Hearing the Diagnosis
I cried when I heard it. Not because I was shocked — deep down, I already knew — but because it was official. On one hand, I felt relief. Finally, there was a name for the differences I had noticed since infancy. On the other hand, I felt overwhelmed. What did this mean for him? For me as a parent? How could I do right by him when I didn’t even know what the “right” looked like?
Parenting is always trial and error, but parenting your first child feels like the ultimate experiment. You don’t know yet what works, what doesn’t, or how to adjust — and looking back, I wish I could have done some things differently. But I also know now that growth is the whole point of parenting. We’re meant to evolve alongside our kids.
The Next Steps
The diagnosis was only the beginning. It gave us a starting point to get him the support he needed at school. That’s when I first learned about 504 Plans and IEPs — the tools schools use to help kids with ADHD succeed in the classroom. (I’ll break down the differences between those two in this post, because they confused me at first too.)
504 Plans vs. IEPs
Once my son was diagnosed, the next step was figuring out how to actually help him in school. This is where I learned about two things I had never even heard of before: 504 Plans and IEPs. At first, it was a jumble of acronyms and legal talk — but once I understood the difference, it made a lot more sense.
Here’s how I explain it now, mom-to-mom:
- 504 Plan: Think of this as accommodations. It’s about removing barriers so your child has equal access to learning. For example: more time on tests, being able to take breaks, or shortening assignments so they don’t get overwhelmed. It doesn’t change what they’re learning — it just gives them the flexibility to learn in a way that works for them.
- IEP (Individualized Education Program): This is more intensive. An IEP is for kids who need specialized instruction or services, not just accommodations. That could mean things like speech therapy, occupational therapy, counseling, or tailored teaching methods. An IEP is a whole plan with specific goals and progress tracking.
The biggest difference?
- A 504 makes the playing field fair.
- An IEP changes how the game is played.
Some kids with ADHD only need a 504. Others benefit more from an IEP, especially if ADHD is impacting learning in a big way. And here’s the tricky part: not every school pushes for what your child actually needs. Sometimes you have to advocate (loudly!) for your kid — and that was a lesson I had to learn quickly.
Our 504 Plan in Action
For my son, we decided on a 504 Plan — and this has followed him through elementary school, now into middle school, and eventually it will carry him into high school as well. His 504 gives him specific accommodations that truly make a difference in how he learns day to day.
Here’s what his plan includes:
- Extra time on tests. Timed work has always been a struggle. He tends to rush through assignments because his mind is already on the next thing he’d rather be doing. Extra time helps him slow down and actually show what he knows.
- Separate testing space. At his own discretion, he can take tests away from the group so he doesn’t feel the pressure of finishing with or before his peers.
- Fidgets and doodling. He’s allowed to use fidgets or draw, as long as it doesn’t distract others and he’s still engaged with learning. This gives his brain the movement and stimulation it needs without pulling him away from class.
- Movement breaks. He can move around his desk or the classroom if he needs to, step outside, or pace — which is one of his natural stimming behaviors. This is something he does almost daily after school at home to regulate himself, so having the freedom to do it in class is huge.
- Front-of-class seating. He always has a seat near the teacher to minimize distractions and give him the best shot at staying focused.
These may sound like small things, but together they completely change his learning environment. Instead of fighting against his ADHD, the 504 gives him room to work with it.
Tips for Advocating at School
If you’re just stepping into the world of 504s and IEPs, here are a few things I wish someone had told me at the start:
- Document everything. Keep copies of every email, form, and note from teachers. It helps to have a record when you’re trying to show patterns of behavior or needs.
- Use your voice. You know your child better than anyone. Don’t be afraid to speak up in meetings, ask questions, or push for clarity.
- Ask for specifics. If the school says, “We’ll give him support,” ask: What does that look like? Who’s responsible? How often?
- Remember it’s a team. Teachers, staff, and parents all want the same thing: for your child to succeed. Approach it as collaboration, not conflict — but don’t be afraid to be firm if you need to.
- Bring backup. If you feel overwhelmed, bring your partner, a friend, or even an advocate to meetings. Sometimes having another set of ears makes all the difference.
- Celebrate progress. It’s easy to focus on the struggles, but noticing the wins (big or small) helps your child feel proud and keeps you encouraged.
Advocating can feel intimidating, but trust me — once you start, it gets easier. And the more confident you become in asking for what your child needs, the more your child learns to advocate for themselves too.
CLOSING THOUGHT
Getting the diagnosis didn’t “fix” anything overnight, but it opened the door for us. It gave me language to better understand my son, and it gave him access to the support he needed. More importantly, it started me on my own journey — because as I learned about ADHD in him, I began to see myself more clearly, too.
And that’s where Part Four will take us: my own ADHD diagnosis, and how it changed everything I thought I knew about myself as a mom.